Dystance4Dystonia Cleveland Zoo Walk

Category: Dystance4Dystonia

Online Pre-registration is CLOSED. Please register onsite at the Zoo on Saturday morning.



More about Dystance4Dystonia Cleveland Zoo Walk

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Saturday, October 5, 2013
Registration begins at 7:45am
Event begins at 9:00am

Cleveland Metroparks Zoo
Administration Lot
4101 Fulton Parkway
Cleveland, OH 44144
216-661-6500
Must use the 4101 Fulton Parkway Entrance

Cost $25 per adult walker/Children under 11 are $15 - Fee includes all day admission to the zoo, rainforest, Dystonia t-shirt and refreshments.

My name is Karen.... I have dystonia.

Seventeen years ago I never had heard of dystonia, until I was diagnosed with it in my left hand. Over the years, my symptoms continued to develop, severly affecting my mobility and speech. Today, dystonia affects my whole body.

Due to the medical research and the dedication of some physicians, my final diagnosis came in 2004 of Rapid Onset Dystonia Parkinsonism (RPD). I have been told it is a unique and rare form of dystonia. The diligence of the physicians to find ways to ease the symptoms has been ongoing for years. As the research of dystonia has been evolving, there is still much to learn. Genetic testing is now available to families for early detection. Dystonia has been a major part of my life, but it has not defined who I am. I am a daughter, a sister, an aunt and a friend. I now am adding an advocate for those who are like me. Participating in Dystance4Dystonia is a way that my family, friends, and I can help make a difference.

SKU: 5C65EDF (51)

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